• Blog Posts
  • Discussions (95)
  • Groups
  • Photos
  • Photo Albums
  • Videos

Danny's Friends

  • AMurphy
  • Julie Stutz
  • jessica patzell
  • Karyn Grande
  • Andrew morgan
  • Vanessa Brannan
  • paulskiogorki
  • Allita Parlette
  • Karen Lee Ellsworth
  • Steve Blue
  • Jeanne Jones
  • kimberly pierce
  • Anthony Briggs
  • Debe Hodges
  • Pat Febbraro

Danny's Discussions

life change after cancer?

Started this discussion. Last reply by Randy Henniger 8 hours ago. 1 Reply

how did your life change after cancer?…Continue

Deception at Duke Oncology scam

Started this discussion. Last reply by Jeannie Moore Feb 13. 1 Reply

do search, he's still practising !http://anilpotti.net/Deception at Duke…Continue

Tags: scam, oncology, malpractice

photos and insights about life after cancer

Started Nov 19, 2011 0 Replies

For the estimated 12 million cancer survivors in the U.S., some of life's biggest challenges and successes begin after treatment ends. Here are your photos and insights about life after cancer. …Continue

Tags: cancer, after, life, survivorship

Woman Has 'Terminal Cancer' – Suddenly CURED OF CANCER

Started this discussion. Last reply by Pat Nov 12, 2011. 1 Reply

Woman Has 'Terminal Cancer' – Blows Her Life Savings And Gains Weight – Suddenly CURED OF CANCER…Continue

Tags: cancer, terminal, survivorship, hope

 

Danny's Page

Latest Activity

Randy Henniger replied to Danny's discussion life change after cancer?
"Danny, Thank you, I've posted my photo for the NYT photo collection. Be WELL! Randy"
8 hours ago
Danny posted a discussion

life change after cancer?

how did your life change after cancer?http://well.blogs.nytimes.com/2010/04/08/picture-your-life-after-cancer/For the estimated 12 million cancer survivors in the United States, some of life’s biggest challenges begin after treatment ends. For some, the disease or side effects of treatment can trigger physical changes. For others, the cancer experience can lead to a shift in priorities, bring new insights or…See More
14 hours ago
Danny replied to Vanessa Brannan's discussion stinky feet
"stinky feet,,sounds like good name for a blues band LOL whose smelling feet at still h? what bothers me, & been off  chemo 4 mths is swollen sore feet, dreading restarting Xeloda soon"
yesterday
Danny replied to Jeannie Moore's discussion A very hard post for me to write, but I wanted you all to know ......
"you have been great support to me, i'll miss your encouragement ,but your parents come first "
yesterday
Danny replied to MicheleK's discussion Nutrition Support -- The (almost) Dietetic Technician (DT) Is In
"looks l'll have go back on xeloda my CEA rose to 12.3 after 3mth break , in my case it's a chronic disease,has be treated with Xeloda or other chemo indefinitely even during break...Xeloda has continued to make soles of my feet sore,…"
Monday
Danny updated their profile
Monday
Danny replied to Melissa Rotolo's discussion Questions after Xeloda
"Xeloda has continued to make soles of my feet sore, fatigue etc ,which may account for weight gain I share with her I have been on/off Xeloda for 6 months, in my case it's a chronic disease,has be treated with Xeloda or other chemo…"
May 4
Danny replied to Debe Hodges's discussion Can neuropathy get worse with time?
"my feet still numb 11 yrs after intial chemo,& last yrs FOLFOX, I now use clog type shoes -that chefs use-from a medical supplier, that gives extra support,since worsens with walking,& exercise"
Apr 23
Robert L. Vandegrift left a comment for Danny
"Danny, I guess I haven't looked at this web page for awhile.  On October 8 my wife was diagnosed with multiple myeloma and kidney failure and I haven't been as attentive to My CRC as before.  Yes, I was on Xeloda for 5…"
Mar 17
teresa scism left a comment for Danny
"i was on zeloda pills for 2 weeks and then i had my reaction.  we are going to give it one more try in a reduced amount.  if that doesnt work i have to go back to 5=fu  and have another port put in and wear the pump.  i've 2…"
Oct 4, 2011
Danny left a comment for Danny
"we all need inspiration,but sometimes we need a break..,i'm taking Aug off chemo , after 3 mths, not giving up,just cant handle side effects in this heat"
Aug 3, 2011
Sarah Dees left a comment for Danny
"Thanks for the compliment on the Cancer Woman painting, I'm glad you liked it. You are welcome to copy it and share it. If you want me to send you a photo directly, I'd be happy to. Some people have asked for this before, and I'm…"
Aug 1, 2011
Danny is now a member of My CRC Connections
Jun 19, 2010

Profile Information

Relationship to disease: [select only one]
Patient/Survivor
Race and Ethnicity: [select only one]
Hispanic (of any race)
(Patients/Survivors Only) Type of Cancer: [select only one]
Colon Cancer
(Patients/Survivors Only) What stage were you diagnosed? [select only one]
Stage 3
(Patients/Survivors Only) Diagnosis Date:
October 6, 2000
(Patients/Survivors Only) Chemotherapy Received:
Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin)
About Me:
looks l'll have go back on xeloda my CEA rose to 12.3 after 3mth break

Comment Wall (17 comments)

You need to be a member of My CRC Connections to add comments!

Join My CRC Connections

At 5:13pm on March 17, 2012, Robert L. Vandegrift said…

Danny,

I guess I haven't looked at this web page for awhile.  On October 8 my wife was diagnosed with multiple myeloma and kidney failure and I haven't been as attentive to My CRC as before.  Yes, I was on Xeloda for 5 years.  I don't know if you looked at my cancer page -- it is www.cancerstrategies.info.

 

If you would like to email me it is more timely --- search@xmission.com.

 

I do believe there are things a person can do that may very well help reduce the time a person is on Xeloda, 5FU or some other treatment.

 

Bob

At 11:04pm on October 4, 2011, teresa scism said…
i was on zeloda pills for 2 weeks and then i had my reaction.  we are going to give it one more try in a reduced amount.  if that doesnt work i have to go back to 5=fu  and have another port put in and wear the pump.  i've 2 more weeks off, then we begin pills again. 
At 8:49pm on August 3, 2011, Danny said…

we all need inspiration,but sometimes we need a break..,i'm taking Aug off chemo , after 3 mths, not giving up,just cant handle side effects in this heat

At 10:05pm on August 1, 2011, Sarah Dees said…

Thanks for the compliment on the Cancer Woman painting, I'm glad you liked it. You are welcome to copy it and share it. If you want me to send you a photo directly, I'd be happy to. Some people have asked for this before, and I'm always happy to share it. It was meant to inspire us all to keep going, to never give up and just keep surviving. Best wishes to you, Sarah

At 1:45pm on April 26, 2011, Karen D Black said…
Danny, thanks for the  friend  request!I  was  previousely  on   folfox;but  i  had  a  recurrance  and  my  oncologist     wants  me  to  take  the  folfiri  chemo.  When  i  was  on  folfox;and  remember  every  one  is  different; I  had  severe  peripheiAL  NEURPATHY  WHERE  MY  HANDS  AND  FEET  WOULD  HURT  AND  WHEN  I  WAS  AT MY  WORSE  POINT  OF  MY  FOLFOX  TREAtment  i  sometimes  had  to  use  a  wheel  chair  due to  the  pain  and swelling  in  my  feet,my  doctor   put me  on  lyrica  which  is  supposed  to  help  neuropathy-but  a  side  effect  of  Lyrica  is  swelling  of  the  feet.I had  it severly!   I  did  not  loose  my  hair  but  i  had  major  thinning!!  Ask  for  benedryl  or  (pre  meds)  before  chemo,this  will  help a  lot!! With  some  doctors  this  is  used  with  all  patients  it  will  help  you.  I  also  had  lots  of  energy  after chemo  for  a  few  days,then  i  had  fatigue  and  weakness.They  will  probably  send  you  home  with  an  infusion  pump,as  for  about   a  day  and  a  half  after  your  chemo  is  given  to  you.I did  this  every  2-weeks for  almost a year.  I  Hope  Your  Day  Is  Good!----Karen
At 11:57am on April 15, 2011, Jeanne A said…

Hi Danny, Just reading about your situation.  Starting FOLFOX soon, right?  I think you'll be ok.  Just being aware of potential issues is helpful in identifying what's happening with your body.  I worked through my first course of chemo, which was FOLFOX.  I took off 3 days every other week for my infusion.  The diarrhea wasn't too bad, and was manageable at work.  The fatigue didn't really hit me hard until the end of the chemo, but not so bad at the beginning or middle of the course of treatment.  

So far, just mets in the nodes, or do you have mets in other places?  I know Jeannie Moore has mentioned that you also have abdominal mets?  Me too....

Let us know how your chemo goes.

Thinking of you,

Jeanne A

At 7:52pm on August 19, 2010, Michelle Teczar said…
I read your post to jeanne--I had seven cycles of Folfox with Avastin and I did really well. The side affects are minimal and I had problems only with the bowel function--drink lots of fluids and eat proteins. I am confident you will do well.
At 3:19pm on August 17, 2010, Jeannie Moore said…
The most common side effect of folfox is neuropathy in hands and feet - a numbness/tingling. Lots of information on managing side effects under archived chat tab above.

I was confused about mentioning the whipple surgery - that is for small bowel cancers. I read your notes too fast.

Avastin's job is to cut the blood supply to the tumors so they can't grow. We watch your blood pressure on avastin as it can get high and usually meds will take care of it. The big worry (rarely happens) is a GI bleed so if you have severe tummy pain on avastin - go to er.

when do you start?
jeannie
At 9:20am on August 16, 2010, Jeannie Moore said…
Hey Danny - where did you get the pet? Usually, chemo starts with a combination of what we call FOLFOX with avastin. In order to get erbitux or vectibix, you need to be tested for the KRAS gene first.

if it's in your small bowel, at the beginning of the small bowel, there is a surgery called the whipple that is done.

Once we know what chemo you'll be on, we'll help you manage any side effects.
thinking of you,
jeannie
At 5:55pm on June 29, 2010, Jeannie Moore said…
Hey Danny - there are other reasons other than colon cancer CEA can rise, but 48 is high - normal range is below 3 for a non-smoker or below 5 for a smoker. If you recently had a clean colonoscopy, than we need to order either a ct or pet or pet/ct and see if anything is going on. Feel free to call me tomorrow on the helpline 9:30-4:30 EST so we can chat - 877-422-2030 if you want!
I know this is worrisome....
jeannie
 
 
 

© 2012   Powered by Colon Cancer Alliance.

Badges  |  Report a Problem  |  Terms of Service