(Patients/Survivors Only) If you have metastates, please note where:
Liver, 9 lesions on liver. 8 smaller ones, 1 larger one
About Me:
I WAS DIAGNOSED ON FEB 5TH, 2008. I HAD NO SYMPTOMS OTHER THEN AN OCCASIONAL SIDE ACHE. ON THE 5TH, I WAS HAVING SOME DIFFICULTY BREATHING SO I WENT TO THE ER. AFTER A PET SCAN, THE DOCTOR CAME AND TOLD ME I HAD COLON CANCER WITH METS TO THE LIVER. TWO DAYS LATER, I HAD A TUMOR REMOVED FROM MY UPPER COLON. I AM CURRENTLY IN TREATMENT. I AM HOPEFUL THAT THIS CANCER WILL SHRINK AND OR GO AWAY. MY HUSBAND AND I WERE IN TOTAL SHOCK AND IMMEDIATELY I TOLD MY HUSBAND, I AM NOT GOING TO DIE. I WILL FIGHT THIS AND WE WILL MOVE ON. I AM 53 YEARS OLD. I AM MARRIED TO A WONDERFUL AND SUPPORTIVE MAN, MY HUBBY'S NAME IS JOE. I HAVE A DAUGHTER 16 WHO IS ACTIVE IN HER SCHOOL. I HAVE AN OLDER SON AND DAUGHTER. THEY ARE BOTH MARRIED AND I HAVE 5 BEAUTIFUL GRANDCHILDREN WITH ANOTHER ONE ON THE WAY! MY FAMILY BRINGS ME MUCH JOY! I LOVE TO WALK, WATCH MOVIES, BRING OUR FAMILY DOG TO THE DOG PARK, AND SPEND TIME WITH FAMILY. I AM SCARED OF THIS DISEASE AND SO WANT TO LIVE! I HAVE COME TO BELIEVE THAT THERE ARE NO GUARANTEES IN LIFE AND I DO MY BEST DAILY TO ENJOY THE SMALL STUFF AND TO STAY STRONG. I REFUSE TO BE A STATISTIC. P.S. I HAD MY COLONOSCOPY AT AGE 50 AND WAS TOLD ALL WAS CLEAR AND TO COME BACK IN 10 YEARS! AMAZING!!!!!
Hi Deb, I know it's scary. I didn't want to hear or believe about Tony Snow. But, we don't know his case and we don't hear about all the SUCCESSFUL stories, do we ? You bet I am nervous but, I think we are both going to have positive outcomes. I know the cold thing is not much fun in the summer but, weirdly, it took me a long time to get back to drinking anything cold after because I was so used to it. Try and be strong and I will try too. Fingers and toes crossed ? Speak to you soon with good answers. Stay strong.
Deb, hi. I saw your note in the National Conference Group. By now someone has probably answered your question, but you just go to the main CCA site and sign up to be a member (it's free.) Thanks for joining Spirituality as well. Has not had much activity lately, feel free to post your thoughts!
Hi Deb! Thanks so much for thinking of me and "checking up!" I'm doing very well and enjoying the summer as much as possible. My boys aren't letting me stop to remember that I'm "sick," so life has been pretty normal. We spend lots of time at the pool and at home just fooling around. Very different from what I'm used to in the summer. I usually work at least part time, so these lazy days are nice! I'm amazed by people (YOU!) who can go through this and continue to work. I know my body doesn't feel like working, and I don't think my heart would be in it either.
Are you feeling better after this last treatment? Hope so! And you say that was your 7th of 8? Will you be finished after that or have you got something to do in between treatments? Hopefully, scans will show that your liver tumors have responded and you will be ready for that surgery. I know you'll feel better when the spots in the liver are gone. I sure do!!
I ended up being unable to get my 12th and last treatment because my platelet count was so low, but everyone (the docs) felt okay about that because I've been responding to treatment so well. I start radiation next week, along with continuous 5FU. Looking forward to it in the sense that it will be over in 6 weeks and then we can be on to the NEXT BIG THING, more surgery. I just want to get through it all and go on a major vacation!
I hope your summer is going well and that you're able to fit some fun into your busy schedule! You deserve it! Take care, Deb. Dana
Hi Deb, I know it's hard. It's very hard and the truth is, it sucks ! But, you are doing it and getting through it and that is what counts. I know the cold sensitivity is no fun but, somehow after awhile, I got used to it and it took me a long time to drink anything not at room temp. The fatigue is undeniable. I don't think my mother realized it until she was up visiting and I came home from work and just got into bed and was out by 8pm. But, if this is all helping you, it's worth it. You and I both know that. When are your next scans ? I will be thinking of you. Mine are at the end of July. Of course, I am nervous but I am going to try and stay positive. Let's stay strong for each other. Pretty soon, you and your husband and daughter will be checking in at the dinner table and enjoying a fabulous meal. Stay strong.
Hi Deb,
The appointment at MSKCC went well -- the surgeon there confirmed that Joe definitely needs to have the surgery done and even that the procedure being done is exactly the same one he would perform. He did, however, strongely urge us to come back up to meet with one of MSKCC's oncologists because there is definitely more that can be done in the way of trying to prevent this from coming back -- increases the odds of survival. We came out of there a little more encouraged. So he will have the surgery tomorrow and after he recovers he will set up a time to go back up to MSKCC to talk with their oncologists -- we were told that since we live so close to the Phila area, that he wouldn't necessarily have to go to MSKCC for treatments -- one of the bigger hospitals in the Philly are will most likely be able to implement whatever treatment MSKCC prescribes for him.
Thanks so much for asking,
Lori
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Beautiful family! Just checking in to see how things are going. Let us know how we can help.
Nancy - Patient Support - 877-422-2030
Mine weren't but, we shall see.
Stay strong and do keep me posted.
Hope you are enjoying your summer.
Michele
Are you feeling better after this last treatment? Hope so! And you say that was your 7th of 8? Will you be finished after that or have you got something to do in between treatments? Hopefully, scans will show that your liver tumors have responded and you will be ready for that surgery. I know you'll feel better when the spots in the liver are gone. I sure do!!
I ended up being unable to get my 12th and last treatment because my platelet count was so low, but everyone (the docs) felt okay about that because I've been responding to treatment so well. I start radiation next week, along with continuous 5FU. Looking forward to it in the sense that it will be over in 6 weeks and then we can be on to the NEXT BIG THING, more surgery. I just want to get through it all and go on a major vacation!
I hope your summer is going well and that you're able to fit some fun into your busy schedule! You deserve it! Take care, Deb. Dana
The appointment at MSKCC went well -- the surgeon there confirmed that Joe definitely needs to have the surgery done and even that the procedure being done is exactly the same one he would perform. He did, however, strongely urge us to come back up to meet with one of MSKCC's oncologists because there is definitely more that can be done in the way of trying to prevent this from coming back -- increases the odds of survival. We came out of there a little more encouraged. So he will have the surgery tomorrow and after he recovers he will set up a time to go back up to MSKCC to talk with their oncologists -- we were told that since we live so close to the Phila area, that he wouldn't necessarily have to go to MSKCC for treatments -- one of the bigger hospitals in the Philly are will most likely be able to implement whatever treatment MSKCC prescribes for him.
Thanks so much for asking,
Lori
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