been 1 yr since last post...had 12 rounds of folfiri and avastin ended 6/11, back to work 10/11 only to have mid oct scan be bad news. cblog
A community for those affected by colorectal cancer.
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Don MacLeod
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- Holliston, MA
- United States
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Don MacLeod's Discussions
Right to Die
Started this discussion. Last reply by Don MacLeod Nov 3, 2011. 9 Replies 0 Likes
My favorite statician lost his wife to cancer. At the end, as she had wished, she was home surround by family. He, by her side, dutifully administered comfort drugs. He loved his wife dearly and…Continue
Appreciated development creates a more comfortable feeling.
Started this discussion. Last reply by Cathy Oct 28, 2011. 8 Replies 0 Likes
Chemo is a life sentence for me. Yesterday I had my 22nd Folfiri week on week off cycle. Typically folks get diarrhea but having to be different my bowels shutdown normally for 3-4 miserable days.…Continue
Tags: Folfiri, Zofan, constipation
Cancer changed my ways
Started this discussion. Last reply by Jeannie Moore Sep 16, 2011. 2 Replies 0 Likes
My truck got all our mechanic's recommended services. I didn't put anything off and will soon replace a still good but 7 year old battery just to avoid any reliability issues for the coming winter.…Continue
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Profile Information
- I am a: [select only one]
- Patient/Survivor
- I live in (City, State):
- Holliston, MA
- Age:
- 51 to 60 years old
- Race and Ethnicity:
- White (non-Hispanic)
- I am (a) [select all that apply]:
- Married
- (Patients/Survivors Only) Type of Cancer: [Select only one]
- Colon Cancer
- (Patients/Survivors Only) What stage were you diagnosed? [Select only one]
- Stage 3
- (Patients/Survivors Only) Diagnosis Date:
- March 24, 2005
- (Patients/Survivors Only) Current Status:
- In Treatment
- (Patients/Survivors Only) Chemotherapy Received:
- Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
- (Patients/Survivors Only) If you have metastates, please note where:
- Liver 3 tumors
6x3cm RFA'ed with multi 3cm passes
1.3x1.1cm RFA'ed to 3cm
12x12mm RFA'ed to 3cm
Left lung nodule 15mm x 15mm
- About Me:
- One Monday morning a driver fell asleep and hit my truck head on. It messed my guts up… Until...
3/24/05 Discovery of a unknown colon tumor, Sigmoid Colostomy and FOLFOX. (Sigmoid Adenocarinoma, 5.9x5.0x2cm, Moderately Differentiated, T3N1M0) With shadows on liver metastases couldn't be ruled out.
3/05/07 Stage IV Liver metastases with a mid-operation cancelled resection and the RFA consolation prize.
3/10/08 New liver tumor activity that led to palliative Xeloda which for the moment seems to have my tumors in check. http://www.youtube.com/watch?v=fy24PE8dPK4
3/11/09 Today’s CT scan found my liver tumors, with a little growth but nothing else. We've added Avastin to my Xeloda.
3/24/10 starts my sixth year with cancer. At the moment I am between treatments. I am realizing that getting to the milestone goal of five years gave me some protective comfort from thinking too much about what’s next. I finally put in my papers for a disability retirement & gained approval on 6 May 2010.
3/29/11 Completed 12 cycles of FOLFIRI. Liver tumors have shrunk so we're taking a needed break, will rescan 5/24/11 and then plan the next phase of treatment.
I was never sick with cancer. The diagnosis was a surprise.
I don’t know what is next but I am definitely starting to hate March.
Hold Fast
Don MacLeod
http://techtv.mit.edu/collections/kochvideos
Link to Koch Institute Symposium Videos
http://techtv.mit.edu/videos/3242-2009-koch-institute-symposium---ann-chambers
http://techtv.mit.edu/videos/3243-2009-koch-institute-symposium---sean-morrision
http://techtv.mit.edu/collections/kochvideos/videos/3245-2009-koch-institute-symposium---tyler-jacks-and-richard-hynes
http://techtv.mit.edu/videos/178-why-cancer-drugs-stop-working
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Don MacLeod
Don MacLeod's Photos
Don MacLeod's Videos
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Champneyfalls.m2ts
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Blackcap
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Don MacLeod's Blog
We're talking roid rage
Posted on January 18, 2012 at 5:53pm 4 Comments 0 Likes
I had December off from life-long Chemo & started back January 4th. Unlike previous cycles, I cloistered away in our home for several days. What set me off was that my prior approval, but not my prescription for ambient had run out. The pharmacy tech wrongly suggested that my insurance had changed. Needing to sleep we paid the full prescription cost, a day later gained better pharmacist provided guidance & after two more days the issue was productively resolved. But the…
Continue Ode to trepidation
Posted on January 3, 2012 at 3:53pm 0 Comments 0 Likes
I had December off. Treatment, Folfiri with Erbitux, continues tomorrow at 8am. If I could run away I would but I just can't escape what I carry within.
War on Cancer @ 40
Posted on December 22, 2011 at 12:02pm 0 Comments 0 Likes
Good discussion 40 years into the war on Cancer
http://www.wgbh.org/includes/playerPop.cfm?section=1&featureid=33965
Spiced food while on Folfox
Posted on December 16, 2011 at 4:31pm 1 Comment 0 Likes
While on Folfox, I could have done the bowl. I added hot sause to everything otherwise it would have no taste at all.
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Milestone made me sick
Posted on November 30, 2011 at 8:15pm 1 Comment 0 Likes
Completed my 25th cycle of Folfiri. Illness & a need for potassium kept me 5 hours hooked up in the chair. Unfortunately, my better temperament got up & left the building just after the more normal 3 hours.
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Latest Activity
Latest
YUP, it's back in my Left lobe of liver and (2 spots) and new in the Left lung.Starting to think…See More
Blog post by Annie Gonzalez
Neulasta, you HURT! But I'll put up with you if you can keep me out of the ER!
Status posted by Vanessa Brannan
Gathered med receipts from 2011-whew! Got a lot to tally up for taxes. Between me & hubby-2011 was a big year with med expenses.
Status posted by Stephenie Holmberg
What a DAY! My friend had to go to the ER for high bp. I met her there & stayed with her, for about 6 hours. Got home 10 pm. She's ok, whew!
Status posted by Jeanne A
my husband is HAPPY that chemo brain is kicking in so I'll know what ADHD is like. I want my brain back! (And it's just barely starting!)
Status posted by Vanessa Brannan
© 2012 Created by Colon Cancer Alliance.
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thinking of you today Don - and hoping you'll feel better by Sunday for the big game!
xo
Hi Don,
the hedgehog trail looks awesome! Congrats on a great trek.
KarenB
I know what you mean. I never felt sick until a couple of weeks before I found out I had stage 4 colon cancer with metastitis to both lobes of my liver. I was feeling short of breathe and really tired so I went to the er and found out I had colon cancer. I was admitted to the hospital - had emergency colon resection and then started chemo 6 weeks later. It is scary not knowing anything about cancer and all of a sudden you have it and have to deal with it daily. My oncologist says that according to my cea numbers the chemo is working. It was 250 when I was in the hospital and now it is down to 5.8. I just pray I can make it through the 8 treatments I have left.
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