(Patients/Survivors Only) Type of Cancer: [select only one]
Rectal Cancer
(Patients/Survivors Only) What stage were you diagnosed? [select only one]
Stage 1
(Patients/Survivors Only) Diagnosis Date:
July 17, 2006
(Patients/Survivors Only) Chemotherapy Received:
Fluoroucil (5-FU), Eloxatin (Oxaliplatin)
(Patients/Survivors Only) If you have metastates, please note where:
One adjacent lymph node to tumor
About Me:
My mom was diagnosed with colon cancer at the age of 57 in June, 1986. Due to the complications of the emergency surgery which left her toxic, she almost died. She also took a stroke during the 2nd surgery where the surgeon was trying to 'clean up' her surgical site due to infection. She was never the same again. However, God blessed us as the cancer never returned. She was a survivor of 21 years. She was unable to walk for 19 years due to rheumatoid arthritis. This may be a sad story to you, but she is alive and well in heaven now. I am working on raising awareness of colon cancer. I was diagnosed at the age of 41 at Stage III on July 17, 2006. I went through chemo/radiation to shrink the tumor an anterior bowel resection with a temporary ostomy bag, 4 1/2 months of post surgical chemotherapy, and the reversal of my stoma in June, 2007. We need to start screening at least at the age of 40. My mom was diagnosed with colon cancer at the age of 57 in June, 1986. Due to the complications of the emergency surgery which left her toxic, she almost died. She also took a stroke during the 2nd surgery where the surgeon was trying to 'clean up' her surgical site due to infection. She was never the same again. However, God blessed us as the cancer never returned. She was a survivor of 21 years. She was unable to walk for 19 years due to rheumatoid arthritis. This may be a sad story to you, but she is alive and well in heaven now. I am working on raising awareness of colon cancer. I was diagnosed at the age of 41 at Stage III on July 17, 2006. I went through chemo/radiation to shrink the tumor an anterior bowel resection with a temporary ostomy bag, five months of post surgical chemotherapy, and the reversal of my stoma in June, 2007. We need to start screening at least at the age of 40 or earlier when symptoms present themselves. There should not have to be a fight for anyone with any doctors to get a colonoscopy if there is a family history either. Demand the test, demand it and don't leave the doctor's office until you get one. Removing polyps saves lives, trust me; I have had 7 removed. After I got over the shock of a cancer diagnosis, and I accepted the fact of what I had to go through; I made a promise to my God that I would do everything I can to make sure younger people have the opportunity NOT to go through what I went through. I truly believe this is why God saved my life. Although I am not a politician, a great writer, or a famous person, the little me can at least tell my story and make awareness to all I meet. May God Bless each person who reads this with an abundant, healthy and prosperous life. May you each find your purpose for when you do, true happiness inside will be with you. No person, place or event in life can take that happiness and peace away from you. Sure there will be sadness and trials, but within you know that everything works toward the greater good; and that you and your loved ones will be okay in the end no matter what happens.
Please read my purpose. Thanks. And can you pass this on? I only need 107 signatures to make 2,000. The guestbook link is at the bottom. Then I will be done.
Thanks and Love, Dottie
COLON CANCER SCREENING LAWS NOW COVER HALF OF U.S.
POPULATION
Five States Passed Laws in 2007, but 26 Still Earn D's or F's on Legislation Report Card
Colorectal cancer is the second leading cause of cancer deaths for men and women combined in the United States, but it doesn't have to be. Colorectal cancer can be successfully treated more than 90% of the time when detected early.
Unfortunately, there is no federal legislation requiring insurance providers to cover the cost of preventative screenings, leaving many people uncertain whether or not these screenings are covered by their insurance providers. In recent years a number of states have adopted preventative screening legislation for colorectal cancer.
In this 2008 Colorectal Cancer Legislation Report Card, find out if your state has passed preventative screening legislation, and what you can do if your state fails to make the grade.
Sign my guestbook in support of colon cancer legislation.
........ Mocking the disease. I have learned that even on the worst days I could mock the illness and say oh man too much bathroom time. That's my favorite room in the house. I am grateful for all the times I get to see my towels. This is what I did. I named my stoma Sylvia. A stoma is a piece of intestine placed outside your belly skin to release stool. Well here is something else I shared at the cancer hospital a few months ago. The patients, nurses, and doctors had a good laugh. Hope you enjoy too! Molly, my hero! Yes, she's a horse, but I want to be like her! Meet Molly. She's a gray speckled pony who was abandoned by her owners when Katrina hit southern Louisiana, USA . She spent weeks on her own before finally being rescued and taken to a farm where abandoned animals were stockpiled. While there, she was attacked by a pit bull terrier, and almost died. Her gnawed right front leg became infected and her vet went to LSU for help. But LSU was overwhelmed, and this pony was a welfare case. You know how that goes. But after surgeon Rustin Moore met Molly, he changed his mind. He saw how the pony was careful to lie down on different sides so she didn't seem to get sores, and how she allowed people to handle her. She protected her injured leg. She constantly shifted her weight, and didn't overload her good leg. She was a smart pony with a serious survival ethic.
Moore agreed to remove her leg below the knee and a temporary artificial limb was built. Molly walked out of the clinic and her story really begins there.
"This was the right horse and the right owner," Moore insists. Molly happened to be a one-in-a-million patient. She's tough as nails, but sweet, and she was willing to cope with pain. She made it obvious she understood (that) she was in trouble. The other important factor, according to Moore , is having a truly committed and compliant owner who is dedicated to providing the daily care required over the lifetime of the horse.
Molly's story turns into a parable for life in post-Katrina Louisiana . The little pony gained weight, her mane felt a comb. A human prosthesis designer built her a leg.
The prosthetic has given Molly a whole new life, Allison Barca DVM, Molly's regular vet, reports.
And she asks for it! She will put her little limb out, and come to you and let you know that she wants you to put it on. Sometimes she wants you to take it off too." And sometimes, Molly gets away from Barca. "It can be pretty bad when you can't catch a three-legged horse", she laughs.
Most important of all, Molly has a job now. Kay, the rescue farm owner, started taking Molly to shelters, hospitals, nursing homes, rehabilitation centers. Anywhere she thought that people needed hope. Wherever Molly went, she showed people her pluck. She inspired people. And she had a good time doing it.
"It's obvious to me that Molly had a bigger role to play in life", Moore said, "She survived the hurricane, she survived a horrible injury, and now she is giving hope to others." "She's not back to normal," Bar ca concluded, "but she's going to be better. To me, she could be a symbol for New Orleans itself."
This is Molly's most recent prosthesis. The bottom photo shows the ground surface that she stands on, which has a smiley face embossed in it.
Wherever Molly goes, she leaves a smiley hoof print behind!
Do you support colon cancer legislation in all of the U.S.?
I was diagnosed with colorectal adenomacarcinoma on July 17, 2006. I will always remember that day. It was pouring rain here in Florida and the gastroenterologist wanted to see me in his office at 4:30 p.m. I moaned and cried sounds that I have never heard from me ever. The dogs were so upset that they were doing things they never did before. It was like I was living someone else's life. When I was waiting in the doctor's office with my best friend, I saw one of the medical assistants leaving. And I said to myself, how blessed that person is to leave with a healthy body. My cat Rosie, disappeared the night of my diagnosis along with my other, Belle, two weeks previous. I do not know how I made the runs to the shelters between pet/ct scans and rectal ultrasounds, I know now it was Someone helping me through even though I was on a different plane of consciousness as my friend calls it. I call it shock while the body is going through the motions. Since then, I have not taken my life for granted and I pray that I never will again. I have gone through an implant of a chemo port to my heart, six weeks of chemotherapy (through an intravenous 5fu pump), six weeks of radiation, a bowel resection with an ileostomy bag, and now I am going through 18 weeks of 5fu, oxaliplatin, and leucovorin for the post-surgical chemotherapy. I was diagnosed stage IIIA with metastasis to one adjacent lymph node by the tumor. What was left of the tumor ,which was shrunk significantly by the pre-surgery chemo/radiation, was found one centimeter from the anal sphincter! The anal sphincter is the muscle which moves when you go to the bathroom and it also helps hold your bowel movements. Thus, my surgeon saved my anal sphincter with only a thread in which to work. I am blessed to be here today and I am working full-time. I finished chemo on April 20th. The pet scan came up clean. Now we are looking to the final cancer surgery which is the reversal of the bowel back into place so I can eliminate stool like others. It has been 3 months since the ostomy reversal surgery, and it seems like everything has gotten almost 'normal'. My scans are clean, my cancer markers in the blood are good, and my colonoscopy found one baby polyp. I am very, very blessed. Thank you for your prayers!!
Hi Everyone, The first set of bloodtests are good. Lymphocytes are normal, but I would still like them higher. They are the t-killer cells of cancer. I had such a wonderful time at my dad's and in the mountains. I can't put into words how grateful I am to be alive. When your health is taken away, and one has to stay in bed; I guess the simple things one is very appreciative of. I had a complete meltdown disposing of my mom's things on Friday. I just lost it and cried like a baby for a while. I… Continue
First of all this is for Amy, Amy I wish only health and happiness for you. I pray for this daily for you, Sweet Girl. You are the most unselfish person I have ever known. Doing all these good things for others and not even mentioning yourself and what you need. This will all pass, Girl. I know it's rough and you feel so tired, nauseated, and like someone ran over you with a bus. It completely sucks. I am praying that this passes for you and that the docs who take… Continue
Okay, I am in a writing mood today. I am the woman, who never sleeps, as Denise and some coworkers call me. HAHA
Today is Cindy's 43rd birthday. It's on Father's Day and today is a tough one for she misses her dad who passed onto Heaven at the age of 42.
Anyway, to my wonderful friend and amazing sister, Cindy. I call her sister for I feel like she is one. When I need to talk, who is the first person I think…Continue
I had some very tired times during chemotherapy. One night I had this thought that I felt like Rocky in the ring, being so exhausted and fighting for my life!
Since Rocky was always one of my favorite movies and fictional characters, I made a plan to climb up the Art Museum steps in Philadelphia. I was born in Philadelphia and it will always remain a special place in my heart. Since our theme is Philadephia freedom for the talent show at school, I added this to the end to get the… Continue
I think most of you received my email about the appointment I had this past Tuesday with Dr. Shibata aka Ultraman. Well he did order a colonoscopy, thank God. I did bleed right there on the table as he performed his exam. He believes it's scar tissue since it's very firm where he reconnected me on the left side and where the radiation was blasted.
So we're onto the colonoscopy on Friday, June 13th. Some of my high school friends from Prendie and I… Continue
I hope u are doing good. Just wanted to say Hello.
I'm one such survivor who was able to convince my doctor to have colonoscopy at age of 29. I was curious to get colon checked as my grand mother died with colon cancer. My doctor tole me that he cant recommend the test as a preventive measure . Test can be done only if u have symptoms. Few months later I told him I'm getting blood in rectum and he immediately recommended to have a colonoscpy. At that time I was living in Maryland, now I moved to Europe and would like to actively campaign for making colon screening mandatory once in few years for people below 50 yrs. Lot more people can survive from cancer if detected earlier.
Yes, very aggressive. True, he has the final decision. My mom said, 'if it were me, I would do the excision,' but she is much older, so would want less surgery, and doesn't have all the years ahead that he does. I would do the excision too, though, myself. -cleo
Dottie, I was a polyp in the rectum, a carcinoma. They removed it in the colonoscopy. There was a little margin between it and the wall, and early stage-- what makes them want to do radical surgery is its more aggressive type, "poorly differentiated" and "mucinous." We are in the San Francisco Bay Area, where there are a few expert colorectal surgeons, so feel like we've gotten good advice. Yet, hearing many people on the CRC site saying they had the transanal excision done... urgh. Cleo
Hi Dottie, All three surgeons are colorectal specialists. And one even asked advice from another one who used to work at UCSF, who now works at the City of Hope in the L.A. area, a highly-regarded doctor, and he agreed that a colostomy was the answer, not even the sphincter saving one where they remove the rectum-- the bag. I don't know what to think!
I guess my question to you, is what did your surgeon tell you about the excision and about rectal cancer? Your tumor was 1 cm from the anal verge, and my partner's is 2 cm, yet they want to get rid of the entire rectum.
Hi Dottie, The sphincter-saving transanal excision or the T.E.M.--both procedures do not take all the tissue in the rectum, so there is a possibility of recurrence. This is what the three surgeons we saw told us. Because it is an early stage, we are being told that doing radical surgery will be 99.9999 percent of no recurrence, which is worth it.
My partner and I are comparing the sphincter-saving procedures with the ostomy bag option. He also has stage 1--it was a polyp found 2 cm from the anal verge. We haven't scheduled surgery yet, but need to shortly, after we/he figures out what the best 'cure' is. Please let me know how yours worked. Thanks, Cleo.
Found you on someone elses page. Read your poem, cried!
I have a history of colon cancer in my family and had a doctor tell me not to worry unless it was a pint of blood I guess because I was only 39 and waited. Yes, you have to be the voice and request them to test you! I just finished my chemo and get my first scan in March. Keeping fingers crossed. BTW, my pump that I took home for three days of treatment, I called him Fred. :) Don't ask me why. I hated Fred!
Have a Great Day and continue to spread the word!
Hi Dottie, Thank you so much for thinking of me and leaving a comment. It has been awhile since I have been on crc...It's officially been 2 months since I lost my father. It is complete hell. I miss him so very much. I hope this finds you doing well. Thanks for always checking in on all of us.
Comment Wall (60 comments)
You need to be a member of My CRC Connections to add comments!
Join My CRC Connections
I hope u are doing good. Just wanted to say Hello.
I'm one such survivor who was able to convince my doctor to have colonoscopy at age of 29. I was curious to get colon checked as my grand mother died with colon cancer. My doctor tole me that he cant recommend the test as a preventive measure . Test can be done only if u have symptoms. Few months later I told him I'm getting blood in rectum and he immediately recommended to have a colonoscpy. At that time I was living in Maryland, now I moved to Europe and would like to actively campaign for making colon screening mandatory once in few years for people below 50 yrs. Lot more people can survive from cancer if detected earlier.
Just a note to see how everything is going with you!
Nancy - Patient Support - 877-422-2030
My partner and I are comparing the sphincter-saving procedures with the ostomy bag option. He also has stage 1--it was a polyp found 2 cm from the anal verge. We haven't scheduled surgery yet, but need to shortly, after we/he figures out what the best 'cure' is. Please let me know how yours worked. Thanks, Cleo.
I have a history of colon cancer in my family and had a doctor tell me not to worry unless it was a pint of blood I guess because I was only 39 and waited. Yes, you have to be the voice and request them to test you! I just finished my chemo and get my first scan in March. Keeping fingers crossed. BTW, my pump that I took home for three days of treatment, I called him Fred. :) Don't ask me why. I hated Fred!
Have a Great Day and continue to spread the word!
View All Comments