"Thanks. Jeanne for the welcome hopefully I will open up more in the future really not used to chatting on line."
A community for those affected by colorectal cancer.
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Jeanne A
- Female
- Martinez, CA
- United States
- Blog Posts (36)
- Discussions (225)
- Groups
- Photos (24)
- Photo Albums
- Videos (1)
Jeanne A's Discussions
Stage 4? Chronic Cancer? A special chat time for us!
Started this discussion. Last reply by Cathy Apr 15. 16 Replies 0 Likes
Hi Everyone,Last time I posted I was looking to learn who else in our community has Stage IV CRC. We had over 50 replies to that post, and MyCRC/CCA has created something just for us! We are going…Continue
Ever had drains from your liver, or other drains?
Started this discussion. Last reply by Jeannie Moore Mar 22. 2 Replies 0 Likes
Hi - I'm asking this question for a CRC survivor friend. Yes, she SHOULD be a member here, but has not yet discovered the joys of myCRC. Anyway, she just had a liver resection about a month ago.…Continue
Stage 4? Let us know who you are!
Started this discussion. Last reply by dan brimeyer Apr 16. 70 Replies 0 Likes
Hello everyone, we have had a few new members join this community who are Stage 4. I know we all like finding those who have cases as similar to our own as possible, to share experiences, etc. If…Continue
Having problems with Chat Room, or website?
Started this discussion. Last reply by Katie Matusik Feb 2. 2 Replies 3 Likes
We have a new Chat Room module installed on our website. Some people have been having problems with being bumped out of the room, or having the computer freeze while trying to chat. Some of these…Continue
Jeanne A's Page
Latest Activity
Sweetpea left a comment for Jeanne A"Hi Jeanne, Thank you for the welcome. I'm stage 3, on oxiplatin and xeloda. Had surgery 2/28/12."
Jeanne A posted a status"People often wonder what is the best diet after being diagnosed w/crc. Here is a great resource - http://ning.it/L8a8SD"
Jeanne A posted a status"I have to miss chat today. :-( Unfortunately it's the best time to get my blood drawn today for chemo tomorrow."
Lady T left a comment for Jeanne A"Thanks Jeanne! Good to hear everyone's story! Will continue to interact with the community and promote awareness !"
Debbie Weaver Oxner left a comment for Jeanne A"Hello Jeanne, Thank you all for such a warm welcome. So comforting. My husband was ready to start chemo last year. The delay was due to all the complications from the colon resection, and then had wound care treatment for 8 months. When it…"
MicheleK left a comment for Jeanne A"Hello Jeanne! I'm just amazed at the warm welcome I've received here as an "outsider" and how inspiring, supportive and positive this community is. I'm also so encouraged about all the good news with treatment…"
Jeanne A posted a status"I received an interesting newsletter in the mail from Cancer Fighters Thrive: http://cancerfightersthrive.epubxp.com/t/15171"
"Thank you my dear friend. Just knowing that you all are in our corner is enough right now. My son doesn't drink, smoke, swear - his worst vice is that he uses too much ketchup! We'll know more next week after his scan. …"
Jeanne A posted a status"GREAT column about food, eating, and gratitude: http://www.sfgate.com/columnists/morford/archive/"
Jeanne A posted a blog postOpportunity for health blogger - passing this along
Hi, I participated in a panel discussion for this organization. I'm not interested in the latest offer they have, but you might be! Please respond to them if you are.Greetings from WEGO Health,I am the Community Director at WEGO Health – an online network dedicated to empowering Health Activists. Like you, our members are health bloggers, tweeters and community leaders passionate about helping others.I'm reaching out to you today to let you know about our latest Health Activist Opportunity.…See More
Jeanne A posted a status"I LOVE the newsletter! Thanks to whoever is responsible for creating it. <3"
Jeanne A posted a status"Oh my goodness - we signed papers today to move mom to full assisted living. Moving day is June 1. Oy vey!"
Pat Febbraro left a comment for Jeanne A"Hi Jeanne,
Just wanted to drop a line and tell you I was thinking about you and hoping your doing Ok. I know I dont comment much but felt I had to, dont ask me why so I just went with it. I will be scarce in Chat this week, chemo for some…"
Profile Information
- City:
- SF Bay Area, CA
- Relationship to disease: [select only one]
- Patient/Survivor
- Race and Ethnicity: [select only one]
- White (non-Hispanic)
- (Patients/Survivors Only) Type of Cancer: [select only one]
- Colon Cancer
- (Patients/Survivors Only) What stage were you diagnosed? [select only one]
- Stage 4
- (Patients/Survivors Only) Diagnosis Date:
- October 17, 2005
- (Patients/Survivors Only) Chemotherapy Received:
- Fluoroucil (5-FU), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin)
- (Patients/Survivors Only) If you have metastates, please note where:
- Abdomen, colon, lymph nodes, and spots in lower right lobe of liver
- About Me:
- Diagnosed with Stage 4 Colon Cancer 10/17/2005
Surgery #1, sigmoidectomy 11/05
Surgery #2, hysterectomy, oopherectomy, omentectomy, appendectomy 1/06
Chemo Course #1 FOLFOX + Avastin 7 cycles, dropped Oxali for last 5 - summer/fall '06
Surgery #3, hernia repair and tumor removal - Recurrence #1 7/07
Chemo Course #2 FOLFIRI - fall/winter '07
Recurrence #2 & Chemo Course #3 FOLFIRI - spring/summer '09
Recurrence #3 & Chemo Course #4 FOLFIRI - summer '10
Intestinal Blockage and ER/Hospitalizations July/Aug '10, started TPN via PICC line with only liquids orally - Aug '10
Insertion of PICC line provoked a clot, so put on blood thinners,
Started with Lovenox, switched to Arixtra cuz it's 1x/day
Weaned off TPN, back on solid food - March '11
Chemo Holiday began - July '11
Current diet restrictions - low fat, low fiber
Re-start chemo, course #5, FOLFIRI - Dec '11
Taken off blood thinners at recommendation of expert @ UCSF
Pulmonary embolisms - March '12
Add Blood Thinner Lovenox to the daily routine again
MY BLOG: http://www.caringbridge.org/visit/JeanneA
Jeanne A's Photos
Jeanne A's Blog
Opportunity for health blogger - passing this along
Posted on May 3, 2012 at 2:31am 0 Comments 0 Likes
Hi, I participated in a panel discussion for this organization. I'm not interested in the latest offer they have, but you might be! Please respond to them if you are.
Greetings from WEGO Health,
I am the Community Director at WEGO Health – an online network dedicated to empowering Health Activists. Like you, our members are health bloggers, tweeters and community leaders passionate about…
Continue Yes, emboli, as in more than one embolism. I had several in each lung, near the bottom in the small capillaries. This is an area where there is less risk of a clot traveling to the heart. Thank…
Posted on March 31, 2012 at 10:01pm 5 Comments 1 Like
Yes, emboli, as in more than one embolism. I had several in each lung, near the bottom in the small capillaries. This is an area where there is less risk of a clot traveling to the heart. Thank heavens for my CRC family for encouraging me to get to the ER - without you I wouldn't have been there as quickly. I should have gone Tues instead of Weds. Now I know. I promised my family that from now on I will be more communicative when I don't feel well, being specific about what's going on.…
Continue Home - A Safe and Sacred Place
Posted on February 28, 2012 at 8:06pm 5 Comments 2 Likes
I've been thinking quite a bit lately about 'home', and what it means to me. I made an earlier post about this, reflecting on the differences in what 'home' means to a friend of mine, who doesn't have a permanent home right now. My attitude about home sure has changed over the past 6 years, since diagnosis. Where I live has transformed from being 'my house' to being safe and sacred to me. Honestly, it's not beautiful, I have a lot of old, worn furniture, and too much clutter. Last year I…
Continue Interesting thought process while having a friend visit for a few days
Posted on February 2, 2012 at 12:27am 2 Comments 0 Likes
A dear friend of mine is staying at my house for a few days, and storing some things here until she finds a permanent place to live. When I met her, she weighed about 340 pounds, even with her 5'7" frame that was a LOT of weight. In 2010 she started with the FA program, has lost over 200 lbs (she started higher than 340#) and is just going on a maintenance program. This is the first time I've seen her so healthy and vital! She looks mahvelous, and says she has never felt more healthy and…
ContinueComment Wall (457 comments)
- At 1:10pm on May 18, 2012, Gary304 said…
- Thanks. Jeanne for the welcome hopefully I will open up more in the future really not used to chatting on line.
- At 4:43pm on May 16, 2012, Sweetpea said…
Hi Jeanne, Thank you for the welcome. I'm stage 3, on oxiplatin and xeloda. Had surgery 2/28/12.
- At 5:13pm on May 10, 2012, Lady T said…
- Thanks Jeanne! Good to hear everyone's story! Will continue to interact with the community and promote awareness !
- At 7:01pm on May 9, 2012, Debbie Weaver Oxner said…
Hello Jeanne, Thank you all for such a warm welcome. So comforting. My husband was ready to start chemo last year. The delay was due to all the complications from the colon resection, and then had wound care treatment for 8 months. When it came time to discuss chemo, a PET scan was ordered and he was clear at that time. He is scheduled with the surgeon for his check up next week.
Thanks so much
Debbie Oxner
- At 3:37pm on May 9, 2012, MicheleK said…
Hello Jeanne! I'm just amazed at the warm welcome I've received here as an "outsider" and how inspiring, supportive and positive this community is. I'm also so encouraged about all the good news with treatment advances. Amazing at how long and well ppl are living. I'm definitely here to provide any information and support you or any of the other members would want for nutrition and dietary suggestions.
btw-- I pass by you twice a week on my way to my internship at the VA in Martinez! I'll send you a shout out next time! If you want to reach me anytime, you can email me for nutrition information at kab.michele@gmail.com Thanks again!!
- At 6:12am on May 5, 2012,
Lisa said… Thanx Jeanne I'll get in touch with Michelle about the Metformin have to find something to work til they get Regorefenib. They will b getting it in June for compassionate use .
- At 4:19pm on May 4, 2012,
Mark McManus said…
Thank you my dear friend. Just knowing that you all are in our corner is enough right now. My son doesn't drink, smoke, swear - his worst vice is that he uses too much ketchup! We'll know more next week after his scan. I'll keep you informed. Keep us in your thoughts if you would. Talk to you soon.
- At 1:17am on May 1, 2012, Pat Febbraro said…
Hi Jeanne,
Just wanted to drop a line and tell you I was thinking about you and hoping your doing Ok. I know I dont comment much but felt I had to, dont ask me why so I just went with it. I will be scarce in Chat this week, chemo for some reason really is kicking my ass, both with the fatigue and with the rash and sores in mouth and nose. It goes on and on so I know I dont have to explain further, but I enjoy when your in chat and knew I would be in and out depending on how Im feeling so I just wanted to say hi and wish you well and hope your feeling as best as anyone can under our circumstances. Be well my friend and remember your always in my prayers.
Warm Regards,
Pat aka The Flash
- At 5:02pm on April 30, 2012, Sue Drost said…
So glad to be your friend! As I've followed comments on the site, you've been such an inspiration to me. Thanks!
- At 1:15pm on April 30, 2012, Sheryl said…
Jeanne, you were not outspoken at all. i was happy that everyone else had much to say so i didn't have too! :)
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