"thinking of you Judy...........my buddy, Nancy Taylor, just lost her husband over the weekend. Like you and Dennis, they were best friends. I think matching the two of you up would be a good idea - I know you'll…"
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Judy Bauer's Discussions
An update on Dennis
Started this discussion. Last reply by Jeannie Moore Jul 31, 2011. 16 Replies 0 Likes
On July 14th the love of my life and best friend passed away. He fought this battle for two years like everything else he did with courage, determination and positive attitude. I can't begin to…Continue
suggestions on appetite
Started this discussion. Last reply by Jeannie Moore Jun 20, 2011. 3 Replies 0 Likes
Dennis is hungry and wants to eat but everytime he takes his first bite it's like air gets trapped and he can't swallow or make it go down. any suggestions on how to remedy this?
the fight may soon be over
Started this discussion. Last reply by Nancy Millet Jun 17, 2011. 29 Replies 0 Likes
Hi all. just an update on dennis. went to mayo and they have stopped all treatment and are recommending we check into hospice. can't tell you the devastation of this news! don't know where to turn…Continue
Need to talk to someone currently taking Erbitux? Anyone?
Started this discussion. Last reply by Judy Bauer May 20, 2011. 5 Replies 0 Likes
Need to speak with anyone out there currently taking Erbitux. Side effects, did it or it is working for you? anyone in this community with info?
Judy Bauer's Page
Latest Activity
Profile Information
- City:
- Harrold, SD
- Relationship to disease: [select only one]
- Caregiver
- Race and Ethnicity: [select only one]
- White (non-Hispanic)
- (Patients/Survivors Only) Type of Cancer: [select only one]
- Colon Cancer
- (Patients/Survivors Only) What stage were you diagnosed? [select only one]
- Stage 4
- (Patients/Survivors Only) Diagnosis Date:
- September 17, 2009
- (Patients/Survivors Only) Chemotherapy Received:
- Fluoroucil (5-FU), Avastin (Bevacizumab), Eloxatin (Oxaliplatin)
- (Patients/Survivors Only) If you have metastates, please note where:
- liver, lung, pelvic bone
Comment Wall (18 comments)
- At 9:57am on July 26, 2011,
Jeannie Moore said… thinking of you Judy...........my buddy, Nancy Taylor, just lost her husband over the weekend. Like you and Dennis, they were best friends. I think matching the two of you up would be a good idea - I know you'll click.
http://mycrcconnections.ning.com/profile/NancyTaylor
Also, my friends' site: www.tomzuba.com may be a good place to have a cup of tea or glass of wine.
I'm on the helpline today if you need to talk - 877-422-2030
thinking of you, with tender thoughts,
jeannie
- At 12:37am on June 19, 2011,
Whidbey Woman said…
- Hi Judy, Just checking in. I don't know what to say other than, I am thinking of you. Hugs.
- At 8:04pm on June 16, 2011,
carol lobel said… - hi judy, i was a caregiver for my husband; travelled the road for 4 years with him. at the time of diagnosis they gave him 3 months. he went on hospice shortly before his death.... at home...it was a bumpy road. i know the fears and feelings, and am here to share some of your burden. there are so many of us out there. carol
- At 7:19pm on April 2, 2011,
Carol Becker said… - Judy: I found that when I was on Oxaliplatin I could not drink cold drinks and hot (warm) chocolate was a life saver. At least it kept me from getting dehydrated as that was all I could drink. Carol
- At 6:18pm on February 28, 2011,
K2 said… Judy
best wishes. I, too, took a long break from this website for a while after a friend of mine here died. IT was months before I came back online. I am coming up on my 2-year stage IV mark, and I"m currently NED after two sage IV recurrences. The statistics out there are old - people are living years past the 2-3 year mark with stage IV disease. There are people here 5+ years past their diagnosis. You don't know how long your husband has, nobody does, but there is some hope on the horizon for a longer, more normal life. Come back if and when you are ready, and take some time to take care of yourself.
- At 11:05am on February 10, 2011, Jeannie Moore said…
is she here? thinking of you welcoming in your beautiful grandbaby! Send us details when you can!
xo
- At 8:24pm on April 12, 2010, Jeannie Moore said…
- Hey Judy - I'm no doctor, but what you are feeling is very normal, and I hear it alot. I think it's more like Post traumatic stress syndrome. You've been fighting and worrying about him and just going, going, going. Now, you find yourself in this great situation of him doing so well, and you just can't relax about it.
Give it time, keep talking to each other and do your best to stay in the NOW - tonight, tomorrow, the next day. Those poor soles in Poland got on that plane with no idea it was going to be their last day on this earth - none of us do. Use the cancer as a gift to enjoy each and every day because you realize the gift it is. I think this is why so many folks say their cancer experience has been a blessing - that they enjoy their lives MORE because they treasure each day.
Having said all that, you may find it beneficial to find a counselor as well or post on the message board this feeling, and I guarantee you will start a thread and won't feel alone and know you are amongst friends who feel the same way.
I'm on the helpline all week if you need to talk more in person. 877-422-2030
maybe it's time to start/increase meditation, exercise, reading, movies - things to help distract you and quiet your mind.
fondly,
jeannie
- At 7:02pm on April 10, 2010, Jeannie Moore said…
- Hey Judy - sorry with my delay here - just got back from a baseball tournament for my son. First, I"m glad you are going to have Grothey as your doc. I believe his experience and the NUMBER of colon cancer patients he sees will be far greater than your local guy.
Second, i suspect he is going by his experience - and he probably doesn't see too many colon cancer patients, but it's probably his experience that most folks who have an elevated CEA do have the cancer come back within a few months - this by no means mean it will happen to your husband.
Sounds like he is doing great! Keep up whatever you are doing and try your best to celebrate the now and his stability!
jeannie
- At 4:02pm on March 29, 2010, Jeannie Moore said…
- Dr. Grothey is a top doc - no doubt about it. I never claimed to know anything per say Judy or question Grothey's reasoning. This is why I'd rather chat on the phone which I understand may not be feasible, but we are crossing wires here and causing confusion - which I apologize for.
The language Laura and I questioned is the "remission" statement. Neither of us have heard a doc used that term with elevated CEA. Again, doesn't mean we are right or wrong. Both of us have said many things can cause a rise in CEA other than cancer including this infection from a boil.
I would feel confident with Grothey's treatment plan. I am on the helpline tomorrow if there was any chance you could call between 9:30-4:30 EST and we can review everything so we understand the questions and the answers. If not, we'll do our best this way.
jeannie
- At 12:21pm on March 29, 2010, Jeannie Moore said…
- Hi Judy - I did get a chance to quickly talk with Laura - she was also confused with the language here considering the CEA was over 100; however, we can't make a judgment without more information.
I believe it is always in a patient's best interest to get second and third opinion especially when we're talking surgical. Some surgeons won't consider a liver resection with disease in lung etc., and others will.
jeannie
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