"Hey Karen,
Just wanted to check in and see what's happening with your appeal.
Vanessa"
A community for those affected by colorectal cancer.
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KarenB
- Female
- Cincinnati, OH
- United States
- Blog Posts (15)
- Discussions (143)
- Groups
- Photos (9)
- Photo Albums (1)
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KarenB's Discussions
Social Security Disability
Started this discussion. Last reply by sue kidera Apr 26. 12 Replies 0 Likes
Annual Enrollment & Medicare
Started this discussion. Last reply by R Baker Nov 2, 2009. 1 Reply 0 Likes
KarenB's Page
Latest Activity
April Lewis replied to KarenB's discussion Social Security Disability"I'm sorry. You can never explain big government. I'm in the process of working through my Federal Disability not the same as yours but it could take them up to 6 months to make a decision and I have a lawyer but it wasn't…"
KarenB replied to KarenB's discussion Social Security Disability"DECISION FROM MEDICARE... "We are writing to let you know that we have made a decision on your case. After reviewing all of the information carefully, we have decided that your health has improved since we last reviewed your case and you are…"
KarenB posted a status"Medicare says I am no longer disabled at April 2012 and I am now able to work and my benefits will stop. I will be appealing and need help!"
Vanessa replied to KarenB's discussion Social Security Disability"Karen,
It goes from case to case. I do know that SSD is much more strict than SSI/SSDI. I would recomend either getting an advocate or a non-profit lawyer to help you keep and secure your disability benefits. You should not have to worry…"
Profile Information
- City:
- Cincinnati, OH
- Relationship to disease: [select only one]
- Patient/Survivor
- Race and Ethnicity: [select only one]
- White (non-Hispanic)
- (Patients/Survivors Only) Type of Cancer: [select only one]
- Colon Cancer
- (Patients/Survivors Only) What stage were you diagnosed? [select only one]
- Stage 4
- (Patients/Survivors Only) Diagnosis Date:
- February 23, 2006
- (Patients/Survivors Only) Chemotherapy Received:
- Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
- (Patients/Survivors Only) If you have metastates, please note where:
- lymph nodes, liver, diaphram, rib
- About Me:
- Diagnosed Stage IV Feb 2006 with mets to liver
Colon Resected March 2006
Liver Resected Nov 2006
Liver Resected Nov 2007
Chemos:
FULFOX, FULFIRI, FULFIRI plus Avastin, Xeloda, FULFIRI plus Erbitux
Diagnosed HNPCC
NED April 2009
Complimentary Medicine:
Accupuncture
Reiki
Healing Touch
Meditation and use of CDs for relaxation and stress relief
Comment Wall (126 comments)
- At 12:33am on May 8, 2012, Vanessa said…
Hey Karen,
Just wanted to check in and see what's happening with your appeal.
Vanessa
- At 4:41pm on April 19, 2012,
Andrew said… Well, I am now just seeing people have sent me comments dating back to 2009! I have been a very bad member! So hello KarenB! Hope to make it to Cincinnati this year. Let's make sure we connect again! Sorry!!!
- At 8:11am on April 3, 2012,
Grace De La Rosa Perrin said… Just wanted to drop by and say, "Hey Karen!" xoxo
- At 10:21am on March 23, 2012,
Jeannie Moore said… thinking of you.
Always hard for survivors to lose a friend - when it's a family member to the same disease - omg, you need to be gentle with yourself my friend. Deep breaths, I'm sure you are a comfort to him. Sometimes, no words need to be said. Just sit and be with him. We're here for you.
thinking of you,
jeannie
- At 8:26pm on March 22, 2012,
tonibaloni said… Hi Karen! So happy to meet you. thanks for getting back to Jeannie about the buddy program. I'm hoping that we can have some good conversations. I'm going April 10th for a consult on the HIPEC surgery. So, do we talk here? I'm not sure how the buddy system works. Let me know! I'm happy to meet you :)
- At 12:12pm on March 14, 2012, Karen D Black said…
Karen, How are you doing? How was your trip to see your brother? Are you still in treatment? I have had a recurance to the right lobe of my liver;it's not near a main artery so my radiation oncologist said we are going to go for a cure. I have 3-visits to him before the actual radiation at 2-3 treatments total. I was told if this somehow failed to cure me then i will be put back on chemo. The doc also said i was like in the 15-percent that can have this kind of radiation that could very well cure the cancer. Do you know anything about radiation or have you had it? They told me not to be impatient because the treatments have to be given at precise timing to try for the cure. I would like your input on this Karen!! The side effects are nausea , loose bowels , and right sided chest wall pain. I don;t think i will lose my hair. Anxiousely awaiting to hear from you. HUGS Karen
- At 1:44pm on February 10, 2012, Grace De La Rosa Perrin said…
So happy we've connected here too! Hope you're enjoying your time in FL!
xoxo
- At 11:55am on January 28, 2012, Karen D Black said…
Karen Good to hear from you and i'm happy that your going to your brothers. I'f you can let me know when you make it there safely.I need to talk to you,would like to talk to you when you get their. Hugs Karen
- At 3:17pm on January 20, 2012, Karen D Black said…
Hi Karen,That sounds good lets get together and chat one day. Take Care. Let me know if you go to your brothers. Hugs Karen
- At 12:31pm on January 6, 2012,
sue kidera said… Hi Karen,
Thanks a lot for friending me. I am in the depths right now. I'm trying to make decisions. Can you tell me your experiences with folfuri and erbitux? That is what they recommend for me next.
KarenB's Photos
2011 Cincinnati Undy5000 Honeybuns
Added October 12, 2011 at 9:04pm
KarenB's Blog
Happy Anniversary
Posted on March 24, 2011 at 8:00pm 3 Comments 0 Likes
I was diagnosed February 2006 - this means I am into my fifth year overcoming cancer.
My sons were in high school when I was diagnosed.
My oldest is a now first year law student.
My younger son is at Ohio State and will graduate in June.
I am so grateful for these milestones in our lives.
Thanks everyone for helping me along this journey.
Love,
Karen
Good Ol Summertime
Posted on July 2, 2010 at 4:38pm 0 Comments 0 Likes
From the June Buddy Newsletter:
Rest is not idleness, and to lie sometimes on the grass on a summer day listening to the murmur of water, or watching the clouds float across the sky, is hardly a waste of time.
- John Lubbock
October Update
Posted on October 2, 2009 at 12:18am 0 Comments 0 Likes
Hi everyone, I saw my oncologist on Tue and results from my Sept scans still show NED! I am very relieved. I am grateful for this good news and for your friendship and help. Hugs (()) Karen
Goodbye Dear Patrick
Posted on September 15, 2009 at 9:30pm 1 Comment 0 Likes
O thou, my lovely boy, who in thy power
Dost hold Time's fickle glass, his sickle, hour;
Who hast by waning grown, and therein show'st
Thy lovers withering as thy sweet self grow'st;
If Nature, sovereign mistress over wrack,
As thou goest onwards, still will pluck thee back,
She keeps thee to this purpose, that her skill
May time disgrace and wretched minutes kill.
Yet fear her, O thou minion of her pleasure!
She may detain, but not still keep, her… Continue
Dost hold Time's fickle glass, his sickle, hour;
Who hast by waning grown, and therein show'st
Thy lovers withering as thy sweet self grow'st;
If Nature, sovereign mistress over wrack,
As thou goest onwards, still will pluck thee back,
She keeps thee to this purpose, that her skill
May time disgrace and wretched minutes kill.
Yet fear her, O thou minion of her pleasure!
She may detain, but not still keep, her… Continue
Fall Update
Posted on September 8, 2009 at 6:14pm 0 Comments 0 Likes
A lot going on at my home front. My husband has kidney stones and my sons will be going back to college 15th.
I have several tests coming up 22nd - 29th this month: CT, PET, X-ray, bloodwork. Also GYN and Oncologist appointments too.
With all this going on I haven't been as active on my page or the message board. Sorry, I hope to be back on a "normal" schedule soon.
Hope you have enjoyed these lovely summer days as much as I have.
I have several tests coming up 22nd - 29th this month: CT, PET, X-ray, bloodwork. Also GYN and Oncologist appointments too.
With all this going on I haven't been as active on my page or the message board. Sorry, I hope to be back on a "normal" schedule soon.
Hope you have enjoyed these lovely summer days as much as I have.
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