Linda Franklin
  • 68, Female
  • Valrico, Florida
  • United States
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Linda Franklin's Friends

  • Janet
  • Jamie
  • Cyndie
  • Cristen Pulliam
  • Ileana arriola
  • Kathy
  • Gina
  • Renee's Page
  • Juliet
  • alisa
  • Barb Wyatt
  • BettyK
  • Meri
 

Linda Franklin's Page

Profile Information

City:
Valrico, Florida
Relationship to disease: [select only one]
Patient/Survivor
Race and Ethnicity: [select only one]
White (non-Hispanic)
(Patients/Survivors Only) Type of Cancer: [select only one]
Colon Cancer
(Patients/Survivors Only) What stage were you diagnosed? [select only one]
Stage 4
(Patients/Survivors Only) Diagnosis Date:
June 6, 2006
(Patients/Survivors Only) Chemotherapy Received:
Fluoroucil (5-FU), Avastin (Bevacizumab), Camptosar (Irinotecan/CPT-11), Eloxatin (Oxaliplatin), Erbitux (Cetuximab)
(Patients/Survivors Only) If you have metastates, please note where:
Too many to count mets to liver
About Me:
I needed to sign up again due to an email address change. I am doing well in treatment and love to speak with other survivors.

About Me

Just an update. I am now on my third line of treatment which is Irinotecan, Erbitux and Avastin. I get them all the first week of a three week cycle, the second week I get just the Irinotecan and Erbitux and then the third week just the Erbitux. I finally got the rash under control and feel much better as it was the most depressing experience for me to have that pain from it along with the disfigurement. I start the third of this cycle this week with a CT scan on the 30th of June to see how it is doing. Folfiri did nothing for me and I had tumor growth with it. All in all, I feel quite well. I live alone and can do everything I need to do and then some. Praise the Lord.
Update 9/12/2008
I made the decision to stop treatment about a month
ago after much thought. I am going the "natural" way by being much stricter with my diet. I have bought lots of books and some supplements from the health food store. The Erbitux was and still is awful with it's side effects. The other treatments, I was OK with, but this came down to true quality of life. I got severe nose bleeds requiring trips to ER, a bad skin staph inflammation around my cuticles which is extremely painful. One toe is still sensitive after three months. My right thumb has been incapacitated for a month now. It is called paronychial inflammation and I found out what it was myself....Dr. didn't tell me about it. Also, the rash was unbearable until my sister found something on a website and I knew, then, to ask for an antibiotic. I guess I am tired of doctoring myself! This is with going to Moffitt a major cancer center!
I don't mean to discourage anyone else...each to his own and I will see my onc Tuesday to see what he has to say and to get a PET scan ordered and labs and port flush, etc. etc.

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Comment Wall (21 comments)

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At 6:36am on January 12, 2009, alisa said…
Hi Linda :) I've been thinking about you and wondering if you're ok?
At 11:19am on July 17, 2008, Janet said…
Hi Linda - Thank you for your words of encouragment. I too have tumors spread across the liver, however, I haven't been told yet that they are inoperable. During my surgery last fall, my surgeon did an exploration of the liver and felt if chemo would shrink the tumors that she could go in and remove them. I'm staying hopeful that after six months of finding the cocktail, that I will see shrinking results on my next CT Scan. If not I will have the discussion with my doctor of what's on Plan B to shrink the tumors. There are other options out there for surgery for your liver. There is doctor in Charlotte that does microwave ablation of tumors on the liver and has had great success for those of us that have failed chemo or other treatments. I have my own plan for when I'm going to seek other options should the current plan not show the results I want. Don't give up hope! Check out this article in the Charlotte Newspaper. NEW HOPE FOR LIVER CANCER PATIENTS
KAREN GARLOCH, KGARLOCH@CHARLOTTEOBSERVER.COM
At noon in Operating Room 4 at Carolinas Medical Center, Dr. David Iannitti starts his second liver operation of the day.

The patient is sedated, and Iannitti slits the man's abdomen, making an incision that curves to the right like a hockey stick. The surgeon and his assistant grip the man's ribs with a device that looks like something built with an Erector Set. They crank his chest open, creating a cavity the size of a bathroom sink. Published on 2008-03-09, Page 1A, Charlotte Observer, The (NC)

You are so right about the makeup for mental health. i recently shared with a friend to use the minerals too. They protect the skin while making you feel great. I started using them several years ago to switch from the liquid foundations. What a difference it made for me then. Also, there is make-up out there for burn victims that can also be used. If you have an ULTA store near-by you may want to check there for the burn victim makeup. Unfortunately I don't remember the name of the brand. Stay strong and be well.
At 8:13pm on June 30, 2008, Juliet said…
Hi Linda,

Just droppng by to say hi.
Juliet
At 5:48pm on June 16, 2008, Jamie said…
Linda,
My mom was just recently diagnosed with stage 4 colon cancer and she doesn't want the chemo. We are in desperate need for her to talk to someone to let her know there is hope and not to just take this lying down. She goes to the cancer Dr. on Wednesday. She doesn't get on line so our only hope is to have someone reach her by phone. Good luck with your fight and thank you.
Jamie
At 10:45am on June 4, 2008, Linda Franklin said…
You are correct that some of those things make a lot of sense. I don't eat processed foods, cook all my own stuff and stay as active as I can. Everyone has to do what is comfortable for them. I trust my doctor and run things by him. I believe that so much out there is just to make us scared and guilty that we did something wrong. My cancer is genetic. If cancer was so easy to cure, as some will say with their diets and such, no one would have it. There are plenty of other diseases that need curing also and the medical profession is not into this for the $ which is another argument that some have. I guess it all gets me a little upset.
At 1:11am on May 24, 2008, Cristen Pulliam said…
The new treatment today went well. It was a breeze compared to the FOLFOX 4 regimen. I hope that they all go this easy. We'll see what tomorrow looks like and then wait until the next treatment to see really what is in store for us. I hope that it works! I have a good feeling about it. I have to much life to live!
At 7:03pm on May 23, 2008, Jennifer Wehking said…
Hi Linda,
Great picture of you and the Neufies! All the best,
Jennifer
At 9:43pm on May 21, 2008, Gina said…
Hi Linda,hope your feeling good today,glad to hear about the relay in your area,this will be my first one,I get to be team captain for the mission for mary,I hope she likes the name,its bittersweet,I'm glad to be doing the relay for her,but I wish so hard she was one of those people on the survivors lap,but I know she'll be there in spirit.I'll do some laps for you too! I bought a luminaria for my mom,I hope she'll be proud! write soon,God bless and take care,love and prayers,Gina
At 5:55pm on May 21, 2008, Jennifer Weir said…
Hi Linda,

Are you Apache from acscsn.org? I am jenhopesprays.

I love the photos of your doggies and cute grand kids.

Don't they make life grand?
At 3:23pm on May 21, 2008, Cristen Pulliam said…
I wasn't able to have treatment today because they are placing me on a new regimen. I am no longer going to be on the FOLFOX 4 treatment because it is having to many adverse effects and could potentially kill me if I continue with the last two cycles. As such, I am going to begin the treatment option #2 with the 6 weeks of Lucavorin and 5-FU and then off two weeks and treatment again for 6 more weeks. Then, they will evaluate and see if I need to complete the last two phases in the series. I feel very confident at this point with the treatment options that I have and with my medical treatment (even if I have to have it extended- at least I will be able to enjoy the summer). Plus, my doctor is consulting with a specialist at Ohio University who works with young colon cancer patients. I told my doctor today that if they ask me to send blood or participate in a study (because I am so off the bell curve and if the side effect is there- well, I am the number one candidate who is going to get it)- anyway, I told them that I needed credit and my name in the medical journal! I hate not being able to get the treatment, but in the same sense, I am still alive!
 
 
 

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