Ciao Maureen,ho saputo della notizia solo stamane, so che adesso sei in Paradiso, Non hai vinto la battaglia purtroppo. Ma adesso riposi in pace. Queste parole li lascio a tutti coloro che vedranno la tua pagina. Good Bless.
Hi Maureen......just got sad word this am........thought you would like to know:
>>Hi Jeannie, I joined this site tonight to look for someone to let everyone know that Kelley Pennycook has sadly passed away on Nov 6th.
I have read her comments both to and from her friends on this site and they all seem very close and supportive of each other.
I thought that you might be able to let everyone know (if they don't already)
HI Maureen, Haven't been on for a while. I think I told you about my partner going on the trail drugs. He was a match for them but I am not too keen for him to do the trail thing as some people will get the drug but others won't. You will not know if your getting the drug or not. We have just got Avastin on our government free list in Australia, so I would prefer he go on that, as I know it has had some great results in America. I hope you are doing ok.
My parter is well on his chemo, now without the Oxaliplatin, he put on weight as he doesn't feel sick in the stomach. One more round of the old chemo then more scans to see how his lungs are looking then hus oncologist will decide the next plan of attack. Would love to hear from you again. Colleen
Hi Maureen
sorry that it has taken me a while to get online again. How is your port? I did not have many problems with mine, I did wear a pump for 48 hours twice a month. I did not get irinotecan, I only got oxaliplatin and 5 FU. I worry all the time about the future, and I also feel like I'm living some kind of nightmare. The only thing I try to do is just enjoy something each day. I worked throughout my chemo, although I did work 2 half days after it, because I was tired.
Kimi
Hi Maureen. I am so happy you wrote. I have not been on this site for a while. I am sorry to hear that your treatments have not worked for you. I can totally relate to that. I am currently dealing with cancer in my lungs and now in my liver. I was on Xeloda the chemo pill from May to October 2008 and that did not work. The cancer spread to my liver at that time. So, I began another chemo treatment in Nov 2008 and ended Jan 2009. That also did not work so I have a total of 3 spots on my liver and a lot of spots in my lungs. The last chemo I was on was when I lost my hair. I was really freaked out when it started coming out but got to the point where I said just buzz it off. My hair is now starting to grow back. My hair was part of my identity. I was known for my naturally curly hair so losing it was a big deal. I did however realize that it is just hair and as long as I am still here, I don't care if my hair is.
I just finished 25 radiation treatments because I developed a cough. They wanted to get it under control. I finished last week and now have to decide what my next step is. I know how discouraging it can be when things don't work but don't ever give up hope. God has the last word, not your doctor!! Even though I have gotten worse, my faith has gotten stronger and I still have hope. If you look at my situation in the natural world, it does not look good. However, I know that there is more and that miracles do happen. I also don't look at death as a losing situation. If I live great, if I don't, I get to go to heaven and how is that losing. It is a win, win. I still have times of doubt and worry and all that other stuff because I am still human but I know that God is holding me and never leaves me and that gives me comfort.
Stay strong Maureen. I know it is hard but just take one day at a time or one moment at a time. I am so happy you wrote and hope to hear back from you soon.
I will keep you in my prayers. Always hopeful, Jessica
Hi Maureen, sorry it took me so long to get back to you. I have 3 teenage girls at home, so now with myspace & facebook & msn I hardly get a chance to get on the computer. Thanks so much for the reply, I am trying to get info as my partner does not like computers. When you said that this is the third time you have been on the Oxiliplatin, in what time frame are you talking about? How many years have you had colon cancer? I am sorry to hear that it does not seem to be working for you any longer. What is the next option for you. My partner wants me to look into M.D. Anderson. Do you know anything about this hospital? Would love to hear from you again. Cheers Colleen
Hi Maureen, Hope your doing ok? My partner just had a scan and the cancer in his lungs has not shrunk so he is going on some trail drugs from Canada if he is a match. He has been on chemo since Oct 08. Oxaliplatin made him so sick, gave him lock jaw and the shakes, pin & needle in his hands and feet all the time. The doc had to take him off after 7 treatments as it was doing too much damage to his body. It did not shrink his tumours but maybe it could have stopped them growing faster. Who knows! Colleen
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Just wanted to say hello and see how you are doing. I hope all is well.
Vanessa
>>Hi Jeannie, I joined this site tonight to look for someone to let everyone know that Kelley Pennycook has sadly passed away on Nov 6th.
I have read her comments both to and from her friends on this site and they all seem very close and supportive of each other.
I thought that you might be able to let everyone know (if they don't already)
http://www.lifenews.ca/thespec/profile/61427--pennycook-kelley-marie
Thank you very kindly,
Laura
(Kelley was a friend of my daughter's)
My parter is well on his chemo, now without the Oxaliplatin, he put on weight as he doesn't feel sick in the stomach. One more round of the old chemo then more scans to see how his lungs are looking then hus oncologist will decide the next plan of attack. Would love to hear from you again. Colleen
you like music?
sorry that it has taken me a while to get online again. How is your port? I did not have many problems with mine, I did wear a pump for 48 hours twice a month. I did not get irinotecan, I only got oxaliplatin and 5 FU. I worry all the time about the future, and I also feel like I'm living some kind of nightmare. The only thing I try to do is just enjoy something each day. I worked throughout my chemo, although I did work 2 half days after it, because I was tired.
Kimi
I just finished 25 radiation treatments because I developed a cough. They wanted to get it under control. I finished last week and now have to decide what my next step is. I know how discouraging it can be when things don't work but don't ever give up hope. God has the last word, not your doctor!! Even though I have gotten worse, my faith has gotten stronger and I still have hope. If you look at my situation in the natural world, it does not look good. However, I know that there is more and that miracles do happen. I also don't look at death as a losing situation. If I live great, if I don't, I get to go to heaven and how is that losing. It is a win, win. I still have times of doubt and worry and all that other stuff because I am still human but I know that God is holding me and never leaves me and that gives me comfort.
Stay strong Maureen. I know it is hard but just take one day at a time or one moment at a time. I am so happy you wrote and hope to hear back from you soon.
I will keep you in my prayers. Always hopeful, Jessica
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