"Hey Sam,Good to hear from you. have you already had the hepatic vein treatment started? I have seen this procedure done on the internet in 2009,i think it is the same thing you are talking about. Tell me is this where the surgeon puts a…"
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Samuel Kogan's Discussions
treatment through hepatic vein
Started this discussion. Last reply by Jeannie Moore Oct 26, 2011. 5 Replies 0 Likes
I just recently(August 2011) diagnosed with metastatic liver cancer. after 2009 colon removal surgery.Unfortunately I have multiple points. Decided to go with MKCC chemo (?) treatment through hepatic…Continue
Samuel Kogan's Page
Latest Activity
Janelle Hill left a comment for Samuel Kogan"Hi Samuel,
It is great to have you here. We have a wonderful group of people within our online community. I see that you found our message board. Hopefully you were able to get some helpful answers to your questions and…"
Karen D Black left a comment for Samuel Kogan"WELCOME Samuel to CRC! So you have had a recurrance, and multiple liver mets. After you completed your first chemo in 2009-did you have testing …"
Jeannie Moore left a comment for Samuel Kogan"Welcome Samuel, glad you are here. Do you mean HAI? Heptatic arterial infusion directly to liver?
We have many members here managing their liver involvement and many who have had liver resections, RFA etc. and doing well. Our…"
Profile Information
- City:
- morgan hill ca
- Relationship to disease: [select only one]
- Patient/Survivor
- (Patients/Survivors Only) Type of Cancer: [select only one]
- Colon Cancer
- (Patients/Survivors Only) What stage were you diagnosed? [select only one]
- Stage 4
- (Patients/Survivors Only) Diagnosis Date:
- August 15, 2011
- (Patients/Survivors Only) Chemotherapy Received:
- Fluoroucil (5-FU), Xeloda (Capecitabine), Avastin (Bevacizumab)
- (Patients/Survivors Only) If you have metastates, please note where:
- multiple liver metastases
- About Me:
- Diagnosed May 2009 with Stage II Colon cancer, colon removal, zeloda chemo.
Recurrence August 15 2011, multiple liver metastases.
Looking for the people with hepatic vein treatment.
Comment Wall (6 comments)
- At 11:03am on October 31, 2011, Karen D Black said…
- Hey Sam,Good to hear from you. have you already had the hepatic vein treatment started? I have seen this procedure done on the internet in 2009,i think it is the same thing you are talking about. Tell me is this where the surgeon puts a treatment packet near the cancer in the abdoman sending chemo to the cancer? Take Care
- At 8:27am on October 27, 2011,
Pat said… Sam - re: your questions on my page, look for more complete answers in my post on the main forums. But in brief:
How long it took to reduce the size to operable situation? It took nine months of systemic chemo (Folfox + Avastin), a surgery, and then 13 months of HAI pump treatments (1/month) + systemic chemo (Folfiri) before I got to successful liver resection surgery.
Did they combine systematic chemo(FOLFOX) with HAI? Yes. I had a modified version of Folfiri, but they sometimes use Folfox, too.
How you felt physically with device? Actually, I gained a lot of weight from the steroids, but I was able to work full time and had pretty good energy every day but infusion day and the day right after.
Did you re charge locally or travel to MKCC ? Both. I had to go to MSKCC once every 28 days for the HAI pump fill; then I was de-accessed and got the second systemic infusion of the cycle at home. Every other month I also had a CT scan in NYC. So my visits were either 3 or 5 days long (depending on whether I needed a scan.) I was able to combine some of my NYC trips with teaching assignments at my former employer's sites in NJ, so my NYC trips were mostly remote working trips during which I happened to get chemo and see doctors. ;)
P.S. Do you have any suspicious event you may link to reoccurance? Sam, I know that people want to know, are sometimes unreasonably driven to try to figure out "why." Trust me, after 7+ years at this and two recurrences, I've come to realize that "why" is often too multi-focal to nail down to one specific occurrence, situation or event. I was NED on scans for 34 months (almost 3 years) prior to my current recurrence, discovered in Feb. 2011. Why did I recur? Nobody knows, and there's even a theory that the bone mets were just too small to see for the almost three years from my last surgery in 2008. I had a dozen clean scans, then a recurrence. Why? nobody can say for sure. You'll make yourself crazy trying to find something to blame. It is what it is, now - so deal with where you're at and don't stress too much over trying to figure out "why."
Be well, Sam. If you message me privately with your surgery dates, I may be able to touch base with you the next time I'm in NYC (the first weekend of November.)
- At 2:58pm on October 26, 2011, Janelle Hill said…
Hi Samuel,
It is great to have you here. We have a wonderful group of people within our online community. I see that you found our message board. Hopefully you were able to get some helpful answers to your questions and concerns.
I wanted to let you know that we also have our patient support available on our helpline Monday thru Friday from 9:30am to 4:30pm ET, (877)422-2030 if you should need any additional information or if you just need to talk to someone.
I look forward to hearing from you!
Take care,
Janelle Hill
Patient Support
- At 12:40pm on October 22, 2011, Karen D Black said…
- WELCOME Samuel to CRC! So you have had a recurrance, and multiple liver mets. After you completed your first chemo in 2009-did you have testing done pet scan, cat scans, mri's done up until your new recurrance? I have read about arterial infusion but have not had this procedure done.I have had radiofrequencyablation this past March.How are you doing on the chemo? Thinking of you Karen
- At 11:40am on October 22, 2011,
Jeanne A said… Hello Samuel, welcome to myCRC Connections! This is a great group of people with lots of compassion and wisdom. Feel free to ask ANY questions. I haven't had the treatment you mentioned in your profile. I am a Stage 4 colon cancer survivor, dx in Oct '05. I just celebrated my 6th anniversary since diagnosis! I've had 3 recurrences, and am on a chemo 'holiday' from my 4th course of chemo.
How are you feeling? How is the treatment going this time? Do you have any unmanageable side effects? Did you have your whole colon removed in 2009?
Sorry for all the questions. Again, welcome!
Thinking of you,
Jeanne A
PS - we're not that far apart geographically! I'm up in the East Bay.
- At 11:31am on October 22, 2011, Jeannie Moore said…
Welcome Samuel, glad you are here. Do you mean HAI? Heptatic arterial infusion directly to liver?
We have many members here managing their liver involvement and many who have had liver resections, RFA etc. and doing well. Our member, Pat, is one I hope you connect with:
http://mycrcconnections.ning.com/profile/Pat
Please feel free to call us on the helpline Monday or post any questions you have on the message board.
How are you feeling?
fondly,
jeannie moore
patient support
877-422-2030
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