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YUP, it's back in my Left lobe of liver and (2 spots) and new in the Left lung.
Starting to think work is a bad thing since in both cases, scans upon returning to work are always bad news!! coincidence???hmm....
still here I am new year, new Dr. and hope renewed. Got a 2nd opinion at the end of Oct 2011 and what was recommended for me was to go back on Folfiri w/avastin for 3 cycles and rescan. Which we did but since CEA levels kept doubling, it wasn't working.
Dr Lenz now recommends resume FOLFOX w avastin for 3 rounds and rescan. After 1 round of folfox, w/o avastin b/c authorization was not completed in time but so glad to see that CEA level is down. I've just completed round 2 on folfox PLUS avastin and met a new friend, Jennifer Weir (also a CCA membor and whom's profile I've probably glance at) at USC. She is a joy and shared with me a story of a 13-yr stage 4 survivor.....HOPE lives!!!!
Very grateful to have 4 bad days and 10 great beautiful days to spend with my kids and husband!!
Comment
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Comment by Tony Pace on February 6, 2012 at 9:33pm -
Annie,
Sorry to hear about your reoccurance, Thoughts and prayers are with you
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Comment by Crawford Clay on February 6, 2012 at 11:50am -
Sorry to hear it's back. I hope the chemo is working.
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Comment by Jeannie Moore on February 6, 2012 at 10:32am -
Sorry to read this Anna - know it's a kick in the stomach :(.
Dr. Lenz is very, very good. Glad you got to meet Jenn -she's wonderful.
Let's hope the chemo kicks it back again. If you're responded to this in the past, chances are good, you'll respond again!
Hope you can make our webinar Wed night - partnering with our friends at C3 with an update from ASCO GI on the new drugs coming down the pike (hopefully soon!!!)
Details on our main website - you do need to register.
Also, if you missed the integrative medicine webinar from the two top docs out of UCLA, you can see it here:
http://www.ccalliance.org/library/cacc.html
Sometimes, a few steps backwards are needed to move forward. We're here to help Anna!
We also meet daily in the chatroom for support 12-1 EST (9 am your time) if you can, join us!
fondly,
jeannie
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